Hey everyone I'm a 30 year old male that was diagnosed with OS when I was 12 or 13. The Doctor said it was the worst case he'd ever seen. But he said there was nothing they could do and it would go away when I quit growing.
Well its been about 18 years and I'm still having pain. The OS caused my shins to bow slightly, and I now have pain in my hips, ankles and feet. I've seen several doctors and orthopedists over the years. More x-rays and MRIs than I can remember and I have never had two doctors tell me the same thing. I've heard patellar tendinitis, loss of cartilage, arthris etc. (I should clarify that this is both knees.)
All I know for sure is that it hurts. I do less activity now than ever and it seems to be getting worse. Is there anyone who has had a similar experience or some advice. I'll take whatever I can get at this point. Thanks in advance.


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